Tuesday, August 31, 2010

Day 33, 6 p.m. medical update


Greetings from sunny New Hampshire.
This morning, Sage saw Maureen, the Physical Therapist, Barbara the Occupational Therapist, and Claudia, the Speech Therapist! Sage walked eight steps today on her own, using a walker in front of her to hold onto with both hands, AND she did this three times - forward and backward! It was awesome and wonderful to see!
Maureen started with 'warm-up' exercises in the chair, and then Sage was ready to go. She pulled herself up and held on to the walker, with Maureen nearby. Sage 'kicked the can' as it were for good measure, tapping the cabinet with each foot. Bravo!
Claudia and Barbara checked Sage's swallowing today, by having her drink/swallow different consistencies of liquids. The first type had the consistency of honey, the second was a bit more thick - like nectar or a smoothie - and the third was jello. While Sage tried each one out, Claudia would check Sage's with her stethoscope.
Sage then was ready for the fourth: applesauce. She did a wonderful job and was given the green light to start taking in foods such as applesauce, jello, pudding and custard. Claudia explained that the sense of taste is connected to our sense of smell, and due to the placement of the trach and air not going to her upper airway, Sage's sense of smell is not present (at present!).
Claudia explained to Sage that there are two parts to talking: articulation and the sound we make when air passes our vocal chords, which is our speaking and voice. Right now what Sage can practice is over-articulating, to strengthen the muscles around her mouth and face. Claudia also recommended that when reading a book or magazine that Sage mouth the words as though reading out loud.
Barbara talked with Sage about daily tasks she can do for herself that will help to strengthen her and move her along the road of healing: washing her face with a washcloth, putting on her glasses herself, taking her socks on and off, with one big goal being to brush her hair herself.
Barbara had Sage write her name, the date, the name of her dog (Sandy Belle), and also draw circles, all to strengthen her finger grip. She also gave Sage some silly putty with which to exercise her hands and fingers - squeezing it, pulling on it, taking it in and out of the container.
The plan is to continue to wean Sage off the ventilator. This is done by reducing the pressure support of the ventilator. The pressure support is what assists Sage with each breath she takes.
A clarification about the "downsizing of the mechanism of the trach": what this means is that the actual size of the tube that sits in the trachea and the trach collar that holds it in place is replaced with a smaller diameter trach tube. This is done as time goes on and Sage's breathing gets stronger. Right now, Sage has a number 8 'Shiley' (name of the company that makes the device). The 'shiley' is the small mechanism connected to the tubing that provides the support from the ventilator.
By reducing the size of the 'shiley' and having a smaller one, it helps to close the actual physical hole and make it tighter and smaller. This is all part of the plan and progress to become independent of the ventilator. The goal of a smaller 'shiley' is that it is one of the forward steps for Sage to eat different foods, talk, and get off the ventilator.
And an extra bonus: Sage got to eat some black raspberrry sherbet this afternoon. Tuesday is a good day!
the guys are ready for Physical Therapy! Sage's cheering squad!

exhausted! and ecstatic....


12 comments:

  1. Go Sage and team! Great news. Lots of love and prayers from DC.

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  2. KEEP UP THE BREATHING SAGE! You are doing so well! You are beautiful as ever!!!
    Holding light for all of you with love and blessings!

    xo.....Patti

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  3. This was wonderful news to end the day with. I don't doubt that Sage will be out of that hospital before you know it.
    Keep up the good work, Sage, Sophie, and family!

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  4. Sagey, you are cute as ever! Sandy Belle brought us together ten years ago and we continue to cheer you on as you are working so hard and doing so well. We love you and are happy to hear the good news!
    Love,
    Lyn, Rick, & Devin

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  5. Wow! Backflips really are getting closer ;). Such good work Sage! Good to hear your breathing is getting with the program too. Should we start taking bets as to when you'll walk out of DHMC??

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  6. Dear Sage,
    Nice steady work girl! Pace yourself now, and take your time. We will be here cheering you on and appreciating your beautiful grace and strength.
    Much Love, Cynthia W

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  7. Walking...reading...facebook...email...miraculous steps...Peter Rabbit, The Orange Gorilla and The Goat remain true guardians xoxo I am dazzled by this progress! Smiling with love and sweet thanks to all at DHMC! What strides Sage Bug!!! You are amazing!!! Sophie, wish I was there to hug you and Sage and Margaret and Jim :-)

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  8. Yum! Applesauce, pudding and custard! Is that a food group? ;-)

    We're so enjoying reading about your progress every day!

    The Berryhills

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  9. You were right that pictures are GOOD to see! Making all the efforts and standing is great, and Sage is GREAT! I was right: her eyes are smiling! What a soothing sight to see! This is fantastic, and I hope she soon can walk more than three times eight steps, that she can eat whatever she likes, that she is soon talking too much, and that she re-learns to write quickly!
    Thank you for the explanations about the "Shiley"! Glad that she is no longer bleeding, and that the size of the tube will quickly be reduced! And she does need to breathe well to do all the things she is supposed to do! We are behind her, cheering on, and congratulate her on her amazing progress!
    Much love and the best of our thoughts with you, Sage, and all of you in New Hampshire with such beautiful skies. Suzy and Sandro

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  10. Wow! It's great to hear that you are up and about! Sounds like a lot of hard work! Sending you love, strength and courage every day!!
    jaime

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  11. Yippee!
    What a joy to read of all that progress, kiddo!
    I just love the look on Pop's and Maureen's faces as they look upon your first steps in those victorious walking photos! I can also hear Sophie's cheering laugh behind the camera lens loud and clear and full of elation.
    Keep up the wonderful work! It brings joy to many, many hearts~~~~
    Love,
    tooter

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  12. Hi Sage and Sophie,

    What remarkable progress you have made. It seems like only a short while ago we were all really scared and now we aren't anymore. Still obstacles to overcome and lots of hard work, but we are so thankful for it all. Keep up the good work and keep the faith. You are doing so wonderfully and we are so proud of you.

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