Sage has had a day of rest and relative quiet. She had a bath, change of sheets, and her hair washed by Nurse Diane in preparation for a visit by her brother Nathan and her grandfather Pop. She continues to be weaned from her ventilator settings along with the level of sedation medication she is receiving. Her oxygen level is at 30% (the air we all breath being at 21%) and her medical team on rounds today did use the word "great" in reference to some of her numbers.
Sage continues to have a normal white blood count and rids herself of the excess fluids she has been carrying out of necessity of these past 25 days. Even though the pneumothorax seems to have resolved itself, the chest tube will stay in place until she is off the ventilator.
Sage also started NG (nasogastric) feeds today, which is another milestone on the road to recovery. She has a fabulous protein and nutrition concoction specially formulated for her by the Nutrition team here at DHMC.
The Neurology team visited Sage today, and the most exciting part of their visit was that she moved her right leg - which is a first! Sage tracks people and voices with her eyes, continues to respond to simple commands for movement and reflexes, and holds on tight! with her left hand. She also expresses recognition and emotion, as she cried silent tears when she saw the face of her brother Nathan, and that of her grandfather and her grandmother.
The result of the MRI finds that nothing has changed, which means nothing has gotten worse - and this is considered good news. The affected area of Sage's brain is the left insular cortex and seems to be the area associated with movement on the right side - and most specifically, of her right arm. This is also what Sage is presenting clinically, as she has moved her right leg, knees and toes, yet without much movement in her right arm. This however, does not mean that she won't! - or so we say in the land of good jou-jou.
It appears that the opinion of Sage's Neurology team is that Sage's brain lesion is a result of a subacute stroke (infarct), as opposed to cerebritis. The thinking behind this is because Sage's cerebrospinal fluid (CSF) from Friday's lumbar puncture was normal and clinically her condition is not pointing toward cerebritis. The opinion seems to be that the cause of the infarct points more toward a blood clot than a lack of oxygen - out of deductive reasoning, more areas of her brain would be affected if it were the latter.
What this means in terms of prognosis is still uncertain; it is mostly a matter of waiting, weaning, moving forward with small and steady steps, physical therapy, nutrition and rest. Sage is moving forward, in the way that is uniquely and beautifully her own - slowly, surely, steadfastly, sincerely.
For this we are thankful, and hold huge gratitude in our hearts for 'Team Sage' - the medical miracle makers, the miracle channeling team, family, friends, strangers, humanity itself.
Thanks to you, blessings and peace.
Sage also started NG (nasogastric) feeds today, which is another milestone on the road to recovery. She has a fabulous protein and nutrition concoction specially formulated for her by the Nutrition team here at DHMC.
The Neurology team visited Sage today, and the most exciting part of their visit was that she moved her right leg - which is a first! Sage tracks people and voices with her eyes, continues to respond to simple commands for movement and reflexes, and holds on tight! with her left hand. She also expresses recognition and emotion, as she cried silent tears when she saw the face of her brother Nathan, and that of her grandfather and her grandmother.
The result of the MRI finds that nothing has changed, which means nothing has gotten worse - and this is considered good news. The affected area of Sage's brain is the left insular cortex and seems to be the area associated with movement on the right side - and most specifically, of her right arm. This is also what Sage is presenting clinically, as she has moved her right leg, knees and toes, yet without much movement in her right arm. This however, does not mean that she won't! - or so we say in the land of good jou-jou.
It appears that the opinion of Sage's Neurology team is that Sage's brain lesion is a result of a subacute stroke (infarct), as opposed to cerebritis. The thinking behind this is because Sage's cerebrospinal fluid (CSF) from Friday's lumbar puncture was normal and clinically her condition is not pointing toward cerebritis. The opinion seems to be that the cause of the infarct points more toward a blood clot than a lack of oxygen - out of deductive reasoning, more areas of her brain would be affected if it were the latter.
What this means in terms of prognosis is still uncertain; it is mostly a matter of waiting, weaning, moving forward with small and steady steps, physical therapy, nutrition and rest. Sage is moving forward, in the way that is uniquely and beautifully her own - slowly, surely, steadfastly, sincerely.
For this we are thankful, and hold huge gratitude in our hearts for 'Team Sage' - the medical miracle makers, the miracle channeling team, family, friends, strangers, humanity itself.
Thanks to you, blessings and peace.
Glad to hear Sage is able to move her right leg! Every little step in the right (ha!) direction is welcome. Sending love from California. 100° California.
ReplyDeleteThe Berryhills
In the name of love
ReplyDeleteWhat more in the name of love
In the name of love
What more in the name of love
My soundtrack for Sagey Bug tonight.
Sleep in heavenly peace earth angels
Sleep in heavenly peace.
xxxx
Oh that is very good news indeed. As long as she is moving that right leg it means that my days with her on the soccer field--and on the ski slopes--are still to come! Hooray Bug! Keep on moving that right leg! Love love love, t
ReplyDeleteSophie - we have thought of you and Sage often this first week of school here in Ukiah. We are sending warm wishes (110 degrees today!) and love your way. Kris and friends @ ROCS
ReplyDeleteGo Buggy! Be the gorilla! We love you and are thinking of you.
ReplyDeleteFANTASTIC NEWS, SAGE!! When I arrived home, Jennifer popped out with the computer in-hand to show me this great news! We're doing a bitty chant: One twitch, one wiggle, and one movement at a time. Then, a sit, a stand, a baby-step and soon you'll be fine.
ReplyDeleteEverybody is a star!
ReplyDeleteI can feel it when you shine on me.
Sending good Sly and the family Stone love vibes to you Sage!
Thanks for making every Sage day
an amazing turn of the page day!
xo
Elizabeth Doshi
Great news!
ReplyDeletexoxo Karen
Go, girls. You are rocking it. That's dated slang for you are all amazing and focused and doing exactly what you need to do. Blessings are flowing.
ReplyDeleteOh what a sweet update! Big hugs to Nathan from me and George! Today's visit will be wonderful. Really great news on the Dancing Queen! Sage we are so happy for these motions and movements!!! I'm with Catherine, be the Gorilla :-)
ReplyDeletefantastic news! You have this strenght in you, Sage. We are very very proud of you and all the progress you make every day.
ReplyDeleteWe think of you. Hold on tight! :)
Xo
Julia & Thomas
You're a superstar, that is what you are!
ReplyDeleteKeep showing us how strong you are Sage! Good, good news.
ReplyDeletexoxo to all of you in room 12,
Mirza & boys
So glad that she moved her right leg. This MEANS hope, and if she will go on progressing, she will come out of the woods! We are also glad that she recognizes people, and that she can cry, even if it must be really hard to watch. We are now really happy with the encouraging news, and are waiting for more, every day, please!! Much love. Suzy and Sandro
ReplyDeleteI am with Suzy and Sandro. It's good news, even if it must be incredible hard to watch. I also firmly believe that crying helps with coping and emotions, which I am sure Sage must go through now in big waves. Waking up from such an ordeal and everything be/feel different. I am glad you can all be there for her.
ReplyDeleteSay Hi to Nathan !
Go, Sage, keep on amazing the docs !
- Annette
Dear Amazing Folks in Room 12,
ReplyDeleteI was awed today by the difference in atmosphere in the room since my last visit 3 weeks ago. So much more peaceful. And wow, Sage, SO much presence there now, I was starting to wonder if you were going to kick my butt if I said or did anything not to your liking. ;)
Give that mom of yours a good squeeze (oh, and use that right index finger and its companions to do it; it'll make it all the more special for her). She is an amazing woman. If it were possible to bottle all that love she is secreting there, you'd all be rich for the rest of your days!
Keep making such good use of the good jou jou; all of us far-awayers will keep it coming.