Wednesday, August 25, 2010

Day 27, 9 p.m. medical update


Sage has had another day of rest along with sure and steady steps along the path of healing and recovery.
The most exciting update to report is that Sage got vertical on the bed this afternoon!
With the aid and support of Nurse Diane and Maureen, today's Physical Therapist, Sage was scootched to the edge of the bed, able to look out the window at the still green trees, and sustained holding up her head.
This is the first time in what seems like - and is - a long time for Sage to be in a position other than lying down. She did great. The physical effect of being in such a different position, along with a deeper sense of realizing just how much strength has been required of her to get to this place, did cause Sage some real frustration and pain. But in her inimitable style, she pressed on and held on.
From a neurological standpoint, Sage today is making improvement (the words from her medical team on rounds this morning!). She wiggled her right toes slightly and lifted her right knee. Her right index finger has responded to touch and there was an ever so slight, very slight squeeze from the right hand, when asked for it. Sage responds to questions such as "squeeze my hand (left) if you want your glasses on" or "squeeze my hand if you want to listen to your ipod" by either squeezing or not. Tomorrow's goal will have to do with nodding yes or no, but there is a theory that Sage might just use a certain digit for 'no' and a thumbs up would be enough for a 'yes'.
We even saw the trace of a smile cross her face while she watched the antics of her brother and father, as evidenced in the photos below.... Nathan and Mark, sadly, had to leave DHMC today to begin their journey back to Germany.
Sage seems to be getting 'used to' the trach collar, if such a thing is actually possible. The numbers on the ventilator continue to decrease, as does the amount of sedation medication Sage is receiving - again, two very forward steps in the right direction. The NG feeds continue very slowly, as Sage had a bit of an episode twice today with not being able to keep it down. This might just have to do with the fact that she has had very little in the way of what might pass for "food" in her stomach for the better part of a month, so it could be an entirely appropriate response. The question will be asked tomorrow, in regards to this.
Sage continues to get rid of those extra fluids - the other exciting news being that she is only two kilograms above her admission weight! and this is remarkable and wonderful, for so many reasons. It lets those watching know that the kidneys are working and all is well in that department (and therefore others), or as Gramma so noted, "I like this pale yellow urine...." Wait 'till Sage hears that!
Yay Sage! Go fluids go!
Thanks and gratitude to all both near and far, who continue to hold the circle with Sage. It is completely and profoundly appreciated.
Peace, blessings and a restful night for all.
(postscript: it has taken two hours to get this post up because Sage is waking up and boy is she pissed! :) the sedatives have taken off the edge and Peter Rabbit got tossed off the bed! by Sage! and she shooed her own mother away from the bed. Ha! never would we have welcomed such a response to affection.)

how did these two get in the country?
it's not looking good....
oh god. get me more sedatives please...
ah joy, how sweet it is...


15 comments:

  1. All excellent news! Yay!
    Sending you even MORE hugs!
    Betsy

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  2. My husband and I are friends of Margaret and Jim Don. We live in their neighborhood. We have prayed for Sage ever since we heard what happened. We are so happy to hear that she continues to make progress. it is wonderful that you keep this blog up to date, we want to know how she is doing. Our love and prayers to all of you during this very difficult time with your beautiful little girl.
    Mike and Denise McShea

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  3. Great News Sage....All those wonderful moves with your fingers and toes! Before you know it you will be dancing away!
    KEEP BREATHING......MUCH LOVE, PATTI XO
    HOLDING THE LIGHT WITH MANY BLESSINGS....

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  4. timothy kira and lucyAugust 25, 2010 at 7:48 PM

    Incredible! Wonderful! Fantastic news! Sage we are so proud of you! Looks like those backstage passes to the Moby concert I scored for you are going to come in handy! We love you, Bug, and we can't wait to see you soon soon soon. So much love travelling up north to you from Brooklyn... t, kira and lucy

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  5. So happy to hear the good news..keep up the spiciness! We love it! Love,Brennan, Chris, Isaiah and Imani.

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  6. Throwing rabbits around now, huh? Nice to see Sage getting feisty! :-) Much love and light!

    Katie, Jon, Brian & Deanna

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  7. Whoa, sounds like i just missed all the action there in the late afternoon. Go Sage! Keep the good moo-moo (movement) coming!

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  8. Sophie & Sage, I am profoundly moved every time I read your updates. Thank you for sharing this journey with us. It has a lot of meaning for my own life. No doubt this is true for others. Continuing to hold Sage close in my heart. And, Sage, I'm pissed about all of this as well. Keep the faith.
    XOXO Cynthia Watson

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  9. So happy to read all the good news!

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  10. All this good news truly is miraculous. I see Nathan has mastered the "hairy eyeball" so well known to SWS 3rd grade! Sending you love, light, and...movement.

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  11. Hi Sage and Sophie,
    The continued good news is so exciting and we are delighted to hear the daily progress that Sage is making. Keep up the good work!

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  12. This is what we want: every day some progress! And if that right side is beginning to move, what is left there to fear? We rejoice and wait for more tomorrow! Love as ever. Suzy and Sandro

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  13. great news - good for you sagie girl!!!
    we are still sending lots of energy and israeli light and love and chutzpah (that helps in all kinds of situations)
    susie and micha

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  14. Sage.....YOU GO GIRL !!!!

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